The life experiences of children orphaned on account of HIV and AIDS.

Abstract

The goal of this study was to explore the experiences of children who were orphaned on account of HIV and AIDS as well as the experiences of their caregivers, thereby improving the knowledge base of practitioners working with children and their caregivers.This qualitative study was designed to answer the following research questions: • What are the experiences of children orphaned on account of HIV and AIDS? • What consequences does the HIV and AIDS pandemic have on children? • How do children cope with AIDS-related loss and grief? • What are the caregiver’s roles, experiences and perceptions regarding children orphaned on the account of HIV and AIDS? • What resources and support systems are available to caregivers in fulfilling their roles in relation to children? The social ecological model provided the theoretical framework for this study. Qualitative data was collected through personal interviews with eleven children and ten caregivers. This was supported by observational visits to the homes of the participants and secondary analysis of case files. The major themes that emerged were the phenomenon of absent fathers and the dominant role that women play. The caregivers had to keep their grief to themselves and more urgent stressors took priority in their lives. Grief was often held in abeyance as the caregivers had to focus on daily survival needs. Poverty overshadowed the lives of all the participants and a large portion of the South African population. Despite this the resilience on the part of the child participants was remarkable. Emanating from these themes, recommendations for social work practice and implications for future research are proposed.